My Hero

For those who may not know, my son has Pulmonary Atersa with a VSD. Basically, Thomas' pulmonary artery did not develop and the blood that should flow through it into the lungs is unable to do so. As of now, he has tiny vessels that are pumping the blood throughout his lungs but unfortunately, they will not be able to do so forever. Eventually, Thomas will need a very risky and quite complex surgery to take these vessels and fuse them together to create a larger vessel in hopes of providing the proper amount of blood flow throughout his lungs. Doesn't sound like much fun, huh?
Like I said before, he also has a VSD which is a small hole in the bottom of his heart. The VSD is a walk in the park to fix compared to the latter. Thomas however, is a fighter. After spending his first three months in the NICU that little baby has been through quite a lot for the short period of time he has been here.

Thomas went from going back and forth on a ventilator to a CPAP to a high flow cannula, a regular cannula...To currently no oxygen at all, he was poked and prodded with tests after tests, a heart cath, G-Tube placment, and much more...

Don't get me wrong, these tests were neccessary and I am thankful and graatious to all his doctors and nurses that took such good care of him in the NICU...But really, he has been through more medical crap in his few days than many will in a life time.

But...he has adapted so far and is becoming quite a little character. I wish I could trade places with him but of course we don't always get what we want. All in all, he has been such a little trooper and quite a fighter. I wish I had as much courage as he has in his little pinkie. He is so strong.

As for now, we wait. Wait for the cardiologist to say ~OK~ Let begin the process of preparing him for one of many difficult surgeries on his precious little broken heart. Until then, he is home with his Mommy and Daddy and Peyton get bigger and stronger. He has gone from 4.5 lbs. to a little over 10 lbs. I swear time goes by so fast and he is getting bigger everyday...For that matter, bigger by the minute!